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Sickle cell disorders are sometimes called sickle cell disease. Examples include anaemia and haemoglobin SC disease and sickle Beta Thalassaemia. Sickle cell disorder is inherited disorders of the haemoglobin (HB) in the red blood cells. They are found in many parts of the world, particularly in people of Africa, Caribbean, Eastern Mediterranean, India, Middle Eastern or Pakistani origin or descent. Sickle cell disorders can affect people in different ways and can particularly affect children's health and their schooling.

NHS Direct: information resource for sickle cell disease

NHS information on sickle cell disease includes evaluative patient information, support organisations and audio clips (in English).

Link [Last update: 2006-01-16; 09:34]

The Sickle Cell Society

The Sickle Cell Society is an African Caribbean health charity. The website is continually updated to provide a valuable resource for news, health issues, events, research, and membership. A valuable resource.

Link [Last update: 2006-01-16; 09:34]

Management and therapy of sickle cell disease (US)

The guide is intended for health care workers involved in the management of patients with sickle cell disease. There are chapters on the management of problems involving acute and chronic organ damage, transfusion therapy, contraception and therapy, surgery and anaesthesia, sickle cell trait, and recent advances in experimental theory. Published by the national heart, lung and blood institute of the USA National Institute of Health. The document is available in ASCII format or can be downloaded using the Adobe Acrobat software. A comprehensive guide.

Link [Last update: 2006-01-16; 09:34]

The Haemophilia Society

The society is working to secure the best possible care, treatment and support for people, and their families, with haemophilia or a related bleeding disorder.It provides information, advice and support services relevant to people with haemophilia, von Willebrand's and other related disorders.

Link [Last update: 2006-01-16; 09:35]

The United Kingdom Thalassaemia Society

The society offers education, counselling to sufferers and carriers and brings together patients, families and well-wishers to exchange ideas, offer support and information.

Link [Last update: 2006-01-16; 09:35]

Organisation for Sickle Cell Anaemia Research (OSCAR)

OSCAR is a small voluntary organisation (based in Nottigham) registered as a charitable trust whose aims and objectives are: to improve public and professional awareness of Sickle Cell Disease;
to advise and support affected people and their families.
Go to link below and type in 'sickle cell'.

Link [Last update: 2006-01-16; 09:36]

TASC: Unit for the Social Study of Thalassaemia and Sickle Cell

TASC undertakes social research on issues of relevance to sickle cell anaemia and thalassaemia; provides educational opportunities for those wishing to undertake social studies on thalassaemia or sickle cell within higher education. Provides consultancy in areas such as education, social services, housing, employment, insurance, health service provision to work towards ending discrimination against those living with sickle cell anaemia or thalassaemia. Provides a gateway to other organizations around the world concerned with thalassaemia or sickle cell anaemia.

Link [Last update: 2006-01-16; 09:35]

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