Epilepsy
What is Epilepsy?
Links to useful websites
National contacts
West Midlands information
Other information
The following links take you straight to pages of information about epilepsy. This information has been checked by doctors to ensure it is correct and appropriate for UK patients.
- National Society for Epilepsy - the National Society for Epilepsy has information on all aspects of living with the condition
- Patient UK - information factsheets written by doctors on: a general introduction, could it be?, dealing with a seizure, living with epilepsy, partial seizures, tonic clonic seizures, treatments, childhood absence seizures.
The following links contain information about epilepsy. The information on these websites has not been checked by our doctors, but they are rated as good quality sites.
- BBC Guide to Epilepsy - provides detailed information, links and recent news on epilepsy
- Epilepsy Action - a UK site with detailed information on epilepsy
- DIPEX epilepsy module - experiences of UK patients who have epilepsy in video, audio or text format
- Driver and Vehicle Licensing Agency - has the medical rules for driving with specific health problems including epilepsy
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- Epilepsy Action (was British Epilepsy Association), New Anstey House, Gate Way Drive, Yeadon, Leeds LS19 7XY Freephone Helpline: 0808 800 5050 Email: [email protected]
- Epilepsy and Pregnancy - Freephone: 0800 389 1248
- Epilepsy Bereaved, PO Box 112, Wantage, Oxon OX12 8XT Tel: 01235 772850 Helpline: 01235 772852 (24 hour answering machine)
- Epilepsy Research Foundation, PO Box 3004, London W4 4XT Tel: 020 8995 4781 e-mail: [email protected]
- Fund for Epilepsy, 38 Buckingham Palace Road, London SW1W 0RE Tel: 020 7592 3270 Email: [email protected] A small national charity raising funds in support of research into the "causes and cures" for this condition.
- Joint Epilepsy Council, PO Box 186, Leeds LS20 8WY Tel: 01943 871 852 Email: [email protected] For information on epilepsy organisations and services throughout the UK and Ireland
- Landau Kleffner Syndrome (FOLKS), 3 Stone Buildings, Lincoln's Inn, London WC2A 3XL Tel: 0870 7470707 Email: [email protected]
- Medic-alert Foundation, 1 Bridge Wharf, 156 Caledonian Road, London N1 9UU Tel: 020 7833 3034 Email: [email protected] The Medic-Alert emblem gives immediate help to police, ambulance and medical services warning them of an individual's hidden allergy or medical condition. Medical history obtainable at any hour by reverse charge call from anywhere in the world.
- Medi-Tag, 37 Northampton Street, Hockley, Birmingham B18 6DU Tel: 0121 200 1616 Email: [email protected] Medi-Tag Pendants, Bracelets and Watches are engraved with vital medical and personal details to provide instant information to Emergency Services. An international 24 Hour Emergency Telephone Service operated by the NHS Trust is also available.
- National Centre for Young People with Epilepsy, St Piers Lane, Lingfield, Surrey RH7 6PW Tel: 01342 832243 Email: [email protected]
-
National Society for Epilepsy, Chesham
Lane,
Chalfont St Peter,
Bucks SL9 0RJ Tel: 01494 601300 Helpline: 01494 601400 (10am-4pm, Monday to Friday)
There are also many other support groups for health in general - go to general health contacts
- Birmingham Epilepsy Social Club, 745 Shirley Road, Hall Green, Birmingham B28 9JR Tel: 0121 745 6025 We provides social opportunities for members, club nights, outings.
-
Epilepsy Action (was
British Epilepsy Association) - has local groups and clinics in the West
Midlands - Freephone: 0808 800 5050 for nearest contact
- Birmingham & Solihull - 0121 747 7128 offer support, advice and guidance on epilepsy as well as details on benefits that people may be entitled to. In addition they are looking for volunteers to manage the groups of any age, race, gender.
- Rugby - 01788 578 440
- Sandwell - 01384 567059 or 01485 540163
- Staffordshire - Stoke-on-Trent - 01782 775 846
- Sutton Coldfield - 01485 540163
- Warwickshire - 01926 633356
- Worcestershire - Pershore - ring main office for contact number Freephone: 0808 800 5050
-
Epilepsy Information Network (NSE)
West Midlands Tel: 01902 736645:
- Walsall Manor Meet 10- 12.30 Tuesdays
- Queen Elizabeth Hospital Meet Fri 9.30- 1.00 pm
- Sandwell General Hospital Paediatric Outpatients Meet First Wednesday of month
- Walsgrave Hospital Meet Friday 10.00-12.30
- Walsall District Epilepsy Action Group Tel: 01543 371665
-
Other West Midlands information can be found under General health contacts - West Midlands
- Search the BBC news for latest news about epilepsy
- Electronic Medicines Compendium contains Patient Information Leaflets on many medicines
- Medical Dictionary
There are many websites that sell products that might be of interest to patients but we are not providing links to these sites. There are also email discussion groups and chat rooms that might help some patients, but as we are unable to validate the information you may receive, we are unable to provide links to these sites.
This website is being
developed at the Library
Services Development Unit.
Page last modified
23 August 2006
. Contact [email protected]
©Copyright 2000-2006 West Midlands Library Services Development Unit